During the car ride home the conversation we had wasn't exactly pleasant. I was upset that he wasn't taking care of himself like he should. I told him that I would not marry him if he was just going to let himself go and let CF take over. He had explained to me that he was use to doing it whenever he wanted and told me when he met me he was just waiting around to die. He had accepted his fate having CF. I wasn't about to accept that. Being married before I knew the wedding vows and till death do you part I was not going to allow that to happen within the first few years of our marriage, especially when something could be done to prevent that. I do know that CF is a very progressive and unpredictable disease but I was not about to just let him go off and let CF take him because he accepted his fate. He apologized and asked me to help him remember when to do his treatments and to take his pills. "You make me want to be a better man and take better care of myself. I just need a little help." Jerid told me. Okay I can do that with no problem. I have a weekly pill holder set up for him on his desk where I put his pills so he doesn't forget to take them before he goes to bed. I also have all his nebulizer meds next to his computer so he can sit down and tinker around on the internet while he does his breathing treatments.
After seeing what Jerid was going through I really wanted to help the other CF patients. I signed up as a volunteer with the Cystic Fibrosis Foundation online at www.cff.org. They would send me e-mails on CF related bills that the senate and congress was looking at and so I would write to them expressing my support in CF research and hoping one day they will find a cure. I watched for those e-mails diligently and as I got them I would write my congressmen. I had received a letter from Senator Ron Bishop and I was excited to be written by a state official. Jerid read the letter and asked me why I wasn't more excited than I was. I looked at him and was trying to figure out what he was meaning. Then he said "Honey he says in this letter that he is recognizing you as a CF advocate. This is an honor." Okay now for those who know me know I had to think about this news for a second. It was a lot to take in.
His first hospital visit I did not know what to expect. I have 4 children and I worked so I couldn’t be up there the whole time. I am a mother first but I would go up a few times during his two week stay. I wanted to make sure he was okay. His nurses at the University of Utah hospital on 2 East are the best but I would still worry.
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